🐯🐯🐯🐯🐯🐯🐯🐯🐯🐯 So it has been a few days & we've been quiet but with good reason. For those of you who may have missed it - we are home in Vegas again . Arriving back Friday evening we have just been trying to settle back in & allow Jordan to reacquaint with home surroundings. Saturday was spent over at Gramdmas with Aunt Casey, Jake & Uncle Joe getting in 10 weeks of " catch up"!!! Great day 😊 Jordan would probably tell you that Sunday had been his favorite day so far .. We let him sleep , no therapies & just a little of this , a little of that & a movie matinee of Planes , Fire & Rescue. Monday, we worked some home PT on the treadmill & some work in the Studio & some OT dexterity work on the laptop. The afternoon was spent organizing both kids rooms to prepare for Nana Armstrong's arrival ..... Which brings us to today!!! EARLY start at 6 am & it was non stop with 2 assessments with our new PT & OT @ 8 & 9 , then a follow up with Jordan's neurosurgeon.. .. She was extremely pleased with Jordans progress & told us his last MRI from Phoenix was a marked improvement from the original taken at Sunrise. YES!! From there a quick trip home for afternoon meds, drop Jordan & Tara to Aunt Casey & moi to the airport to collect my Mother. Home , unpacking ,lots of hugs & passing out of gifts , dinner & bedtime. More appointments throughout the week & more blog to come so keep following !!! We can't wait to catch up with everyone over the next few weeks .,, it's good to be Home ☺️😊💜 Dad here. Upon our arrival for the last time we were met with a symbol that everything is always changing. Those colorful walls that would great us with their bright cheery welcome upon our arrival each Thursday and would seemingly change to hues of sadness when it was time to leave come Monday morning, have been stripped of all their color for renovation and repairs. A symbol that all things change. All things need repairing. Everything needs to heal. . . Even a hospital as great as this. Good night Phoenix Children's. I challenge you to follow in Jordan's footsteps. You may be under repair, you may not look like you did, you may not sound like you did and when all is said and done, You Will Be Different. But, your definitely not done yet. You have lives to touch. You have families to heal. Thank you for helping us heal.
🐯🐯🐯🐯🐯🐯🐯🐯🐯🐯 Last days of therapy & I am trying to remember to ask as many questions that come to mind with each therapist for things I may find myself facing once we get home. They have each done such a thorough job with Jordan I feel In pretty good shape & with the prompt of the many pictures @ videos we've taken over the 6 weeks hope to continue taking Jordan closer & closer to his former self. Tomorrow I begin the task of breaking down Jordans hospital room - removing all the posters , cards & pictures we've accumulated during our time here . Thank you to each & everyone of you who contributed to this very precious decor. They have made for a most festive room but now it is time to " give" it back to the hospital in its bare walled state, for the next resident. Today I continued snapping pictures of the staff to preserve them in Jordan's memory. To those PCH staff who may happen to read this if I haven't gotten a picture I humbly apologize but please know my family are indebted to you for going far beyond your professional duties to make our stay a positive experience to encourage the best possible outcome for Jordan. You are ALL amazing .... |
Donations can be made by going into any Wells Fargo Bank and depositing into the Jordan Juliano Benefit Donate Fund
Jordan's StoryFrom John, Melissa & Tara Juliano
Hello everyone, We wanted to include all of our friends in this trying time for our family. Last night, Saturday May 17th at about 5:40pm Jordan fell and received a severe head injury. All three of us heard it happen but none of us saw it. As best as we can summize Jordan was running into the bathroom and went to stop on the tile and his feet slipped out from under him which caused his head to hit very hard on the tile floor. He was responsive at first but after some questioning we realized he needed more advanced care and called 911. HFD arrived within 2 to 3 minutes and we were on our way to St. Rose after 7 total minutes from the call. It seemed painfully longer. Soon after we set of in the ambulance the Paramedic diverted out destination to Sunrise Hospital Childrens Center. If jordan had any hope of a return to the normal boy we know and love that decision was the best decision in a string of great care thet Jordan has received. On the way Jordan's condition gradually became worse. We arrived at Sunrise Hospital Trauma and they wheeled him right in with me following. I answered as many question as I could as they worked on him. They soon asked me to step out to the waiting room. Soon after that the Neurosurgon found us and gave us the situation plainly and clearly. Jordan was very sick and they needed to work aggressively to save his life. The hardest part was hearing that he might not make it through the surgery. . . .We signed te papers and walked with beside his bed to the O.R. We were all allowed tt give him a kiss and then we were walked to the waiting lounge. That was the longest and worst 3 hours of our lives. Tara had many questions and because she had been witness to all the events leading up to now we decided to talk plainly and openly as to the possible results. The Doctor finally came out and said Jordan was doing as fine as he could. His vitals were strong throughout the surgery and when she visualized his brain it looked good but that was only seeing it. there is much more within the brain. We were finally allowed back into the room and saw that Jordan was heavily sedated and was being give blood preaure meds, antibiotics, sedatives, Saline, on a ventilator to breath for him, etc. He has a long road ahead of him. We soon found out children were not allowed to stay over night so Melissa took Tara home and I stayed with Jordan for the first night. All was fine through the first night. In the morning he started to show a higher brain pressure and started to get rid of more fluid (urine) than normal. They took him for another CAT scan and when the doctor came back she was ver pleased with how it looks. We're not quite out of the woods yet, we have another hurdle to overcome. They need to take another CAT scan tomorrow (Monday) morning because the signs of a stroke do not show up until after 24 hours has passed. His reaction to stimulus is positive. When they rub his chest he responds as they feel he should. When they wiggle the IV in his arm he moves that arm slightly. He has gaged at the airtube helping him breath. These are all small but positive signs. This is where we are at currently. I will try and update this as soon as we have any new info to add. The hospital Jordan is staying in is on lower right but we are not in the system yet because we are still listed as a trauma. As soon as we get a real room and not an ICU bed I will update the info. Lastly, If you have received the invatation to this site we consider you firends who even though we may not see you all the time we think of you often. Could you please send out the biggest amount of positive thoughts and/or prayers for Jordan. I know he feels it. We sure do. Love John, Melissa, JORDAN & Tara. Help JordanPlease help us help Jordan and his family after Jordan suffered a terrible brain injury after a fall in his home.On Saturday, May 17th, Jordan Juliano suffered a terrible brain injury after an accidental fall in his home. Jordan is an amazing young man who is in great need of our community's generosity. Jordan is a competitive gymnast, terrific student, and all around amazing young man. His family is faced with the mounting medical bills associated with his treatment. Their insurance will cover some of it but not all it. Jordan will require specialized treatment at an out-of-state facility. The costs of this treatment are staggering and any help and assistance is deeply appreciated.
Brian Gabrielson Team Captain & Friend Archives
August 2016
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